Monday, November 24, 2014

If I Had a Voice

This is what I want to say, but I feel as if I have no voice. This is to the lawyers, insurance adjusters, etc. who have been working hard at making my life miserable. That’s just my opinion.
Five years ago, my husband was injured on the job. From the moment I saw him after that injury, my life was forever changed. I had to re-teach my husband the alphabet. I had to explain that he was a year and a month behind in his memories. I had to show him pictures and tell him stories of the things we had done and the places we had gone. I had to help him remember to shut off the stove when he wanted to cook. I had to hope that when he took the dogs for a walk, he would remember how to get back home. One day he couldn’t remember how to get home. We used to love to window shop. I soon saw my husband curled up on the floor of the mall because he couldn’t handle it anymore.
Six months into the injury, he was finally approved for Rehab Without Walls. I was so relieved seeing him start to get better. They were teaching him how to retrain his brain and lots of other things. Then the two week trial ended and didn’t get renewed. That’s the last improvement I ever saw from my husband. Things consistently got worse. Soon we had to purchase a motorized scooter, so he could attend day trips with the family. We had to plan family times to only be two to three hours because he would pass out randomly after that amount of time.
The last four months of his life were getting really bad. I had to acknowledge that I no longer had a husband who could help me. I had a husband who was physically there but not much else. His memory was horrendous. He had false memories. He had many gaps in his memory. The kids felt like he didn’t love them because he couldn’t remember what they said.
The last week and a half of his life was the worst thing I have ever seen. He was constantly shaking. He had problems walking… Imagine being woken up at 2am by your husband who is stuck in the living room. He can’t move his feet. He’s stuck half way between the kitchen and the living room. He’s shaking so hard that his snuggie is falling off, and he can’t move to put it back on. I tried to help him move, but he just fell against a wall. How is a 5’ woman supposed to move a 6’ man? I know. This is just an emotional rant now.
I was told by the doctor who was with him when he died, that I should have expected my husband to have a heart attack. I was told by another doctor (after my husband died) that these things that were happening to him during his last days were symptoms of a pending heart attack. These are things I heard after he died. I had done everything I could to get these symptoms checked. I rushed him to a doctor to be seen. I was told that they would ask the insurance adjuster again, but that was all he could do. While waiting to get these symptoms checked, my husband died. These were symptoms that had been with him since the beginning of the injury. I have gone back and looked at his records and can see where the doctor made a note of his shaking. Of course, by the time he died the shaking was much more intense. I often wonder what would have happened if we had received longer Rehab Without Wall. I also wonder what would have happened if the doctor requests were approved instead of consistently being denied.
I feel that an offer of $50,000 is a slap in the face to me and my children. We are homeless right now because of what has happened with my husband. We are still trying to piece our lives together. We lost almost everything. Everything I own is in two storage units and a bedroom that my kids and I live in. I know it’s not your job to care, but a fair offer would be four and a half years of permanent disability instead of two years. Another reasonable offer would be four and a half years of the salary he lost when he was injured. If you truly want to pretend that you understand your part in my husband’s disability, you could even offer a realistic amount of money.
 
Let me introduce you to my family. We were happy. We helped out in our community. We loved each other. Now the father is dead. The mother is having to learn how to be a single mom, juggling work with taking care of the kids. The son is trying to be the man of the family now even though he lost his childhood early. The daughter has extreme anxiety and cannot see a doctor or therapist about it because it causes panic attacks. This is what I’m striving for. I would love to have a realistic settlement, so I can focus on raising my kids. I want to have time to be able to show and teach my son how to be a man. I want to be able to show my daughter that life is safe because we have a home to live in.
One last thing. I feel that for four and a half years we fought so hard to be heard and helped. We were honest and truthful. We didn’t make up things to try to get more money. We lived on what we were given. We got rid of most of our bills including TV and internet. We worked on being satisfied with what we had. I feel that you thought that we weren’t being honest. Almost every doctor we dealt with saw who my husband was and saw his disability. They all agreed that we were honest about what was going on. I can show you proof through pictures and videos of the things I have been describing as symptoms of his disability. We have been consistently honest, and I would like you to acknowledge that by offering a reasonable settlement. That’s it. I have tried to write this without a ton of emotions, but I am angry and hurt. It’s only been 9 months. I am still working on figuring out my “new normal” life.      JOY

Monday, November 17, 2014

My New Life Motto (to go along with my new life)

I recently wrote on facebook that my new life motto is...If I have to live, then I want to laugh. This new motto just popped out of my mouth when I was with my personal trainer at the gym. (I have a personal trainer because I have no idea how to get into shape, and I have no idea how to use the machines.) We were talking about my road trip with the kids. I'll tell you about that in a little bit. She said that she was amazed at how much she laughs when she is with me...especially considering the fact that I am a recent widow. Then these infamous words popped out. The more I thought about them, the more I thought about how accurate they are. I am not really fond of living. I choose to live because I have two wonderful birth children who need me. I also have tons of other kids whom I love and would not want them to have to go through another death. There's other reasons why I choose to live, quite a few actually, but these are the top 2. Okay, fine...number 3 is for my family and friends...I wouldn't want to put another death on them either...

Laughing has become a major way of life for me. I've always liked to laugh, but I laughed most when I was with Tony. I liked to make people laugh, but I had limits as to what I would do. The new me LOVES to laugh. The new me NEEDS to laugh. I now do crazy things so I can laugh...especially if it will give me a fun memory. There's more to this, but I will wait until later to tell you what kind of crazy I have now done. I have noticed that I have changed...and not just a little...I am a new person...I'm not quite sure what I feel about that. One of the things that happened right after Tony died, was that my kids noticed where they missed their dad. It was the things he laughed at. It was the things he did to make them laugh. It was the things he did to make them feel special. They each asked me to allow them to say the "dad" things to me and try to have a "dad" reaction to them. It was hard at first. Now I realize that the new me does that. I have noticed that I say things that Tony would say because no one is there to say it. It just pops out. Half the time I will apologize for it, but the kids find it funny. I am finding that living this way is much less stressful...weird...who would have thought... Now I am doing things that Tony might have done...it just happens...or I just can't see a reason not to do it...to make people laugh...to cross something off the bucket list (mine or Tony's)...to just be able to laugh. I am enjoying those moments. I am enjoying those memories. I am amazed at my changes...sometimes I don't recognize myself.

Now, on to the road trip stories. I know you've been waiting anxiously for them. The trip originated with Jeremiah getting two tickets to see Craig Ferguson. Do not watch him just because I mentioned him. He has a filthy mouth and a raunchy sense of humor. He also has a "Brignolio" sense of humor. I accidently started my family watching him when one of my favorite bands was on his show. Tony loved the humor and started watching. He couldn't wait for the day when he was good enough (health-wise) to go see his show in person. Anyway, Jeremiah invited me to have his second ticket. I said, "YES!!!!! I mean, sure, honey, I will go along with you on a road trip." He admitted later that he invited me because he didn't have the money. I told him I knew that, but I wasn't going to give up an excuse to go on a trip my son invited me on. So that's how it began.

My son likes to do road trips differently than I do. If he sees something during the trip that intrigues him, he stops and checks it out. I now enjoy this way of travelling.We found many new and unusual things...things that others are curious about and never know what it is... It was pretty awesome. There's a western place at the Kettleman City exit on I5 that has a cute playground complete with old building facades with stairs and slides in them. This is a fun little stop. We found a random island that has a weird bridge connecting to it. We couldn't go on it...but we tried...we pretended we were just tourists taking pictures... Universal Studios is really where the crazy started. There's this video on youtube where  2 dudes connect hands going opposite ways on an escalator. Jeremiah said I should do this. I said, "You do it." So he did. He even looked into the other person's eyes as he did it. Then he said it was my turn.......oops.....what did I get myself into? So the first one (yes, first one) was a kids who had his hand out hanging over the edge. I reached out and grabbed his fingers. I couldn't look at him after that. After a few moments, I found it hilarious. Jeremiah enjoyed it. The next time I put my hand over on their hand rail...the lady gave me a weird look...then moved her hand...before she got to my hand. That was fun. And the final one (dun, dun, dun) was a bit unnverving. I slid my hand up this ladies hand...but I got my hand stuck in her bracelet...not planned...I was afraid she was going to think I was stealing her bracelet...... It was awesome...not...but I did find it hilarious...later. We also photo bombed as much as possible. We got sprayed with water on tons of rides (if you are Jeremiah, you got sprayed in the mouth every single time). We hung out with friends. We took selfies with famous people (in the wax museum). We took ridiculous pictures with celebs (in the wax museum). Then we drove north the get Julia and headed to Monterrey. The aquarium was really crowded, but the surrey was fun (it wasn't but I'm trying to be positive for the kids). We got retro candy. We went to the beach. We "accidently" walked through a photo shoot at the beach. Julia froze a wet wash cloth, and then stuck in on Jeremiah. They froze a block of ice and then threw it off the second floor of the hotel while they filmed it. This is the short version. We had a great time. We laughed. I realized I was different. I realized that I kinda liked the new me. I realized that my kids liked the new me.

Anyway...how did I choose joy? I chose joy when I allowed us to go driving without definitive plans and no reservations. I chose joy when I chose to do funny, stupid things. I chose joy when I didn't make us stay at the aquarium all day because "I spent so much money that we are going to enjoy ourselves until we have used up every ounce of the time." I chose joy when I rented a surrey even though I remembered how much I hate them. I chose joy by being flexible. I chose joy by finding things to laugh about and at.                              JOY